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What is adenomyosis?

This disease is common among women — but most don't even know they have it. 😨

A common disease, often misdiagnosed

“Adenomyosis I think is a great condition to educate women because a lot of women do not — have never heard of it. They don't know it exists.”

It’s a fairly common disease — but it’s often misdiagnosed. Its symptoms are harsh cramps, irregular bleeding, painful sex, and unexplained infertility. This is adenomyosis.

Former patient experience

Anita Lindemann, a former patient with adenomyosis, shares, “I spent seven years of heavy, prolonged bleeding, which really affected my life. I didn't feel I had a great quality of life. I'm a very active person and I'm a nurse at a school nurse. So, exercising, walking just the day to day activities of doing my job proved to be very challenging with that heavy bleeding.”

Adenomyosis is a condition in which the tissue that normally lines the uterus grows into the muscular wall of the uterus. It is most common in women aged 40 to 50. “I had three normal pregnancies, all vaginal pregnancies. I used to have very seven-day periods. It was just very to the book. Never had painful periods, never cramped any of that. Then when I was about 45 years old, I started having very heavy and prolonged periods and I could never count on my period,” Anita elaborates more on her personal experience with adenomyosis.

The harsh symptoms

Some women don’t experience any symptoms at all. Dr. Danilyants explains, “Close to 50% of women with abnormal bleeding —possibly even higher — have adenomyosis. If it's not symptomatic, all we can do is maybe get serial MRIs to see the progression of the disease. And we'll always have to counsel the patients that even though they're not having any symptoms if the adenomyosis is pretty extensive, they will very likely have problems with getting pregnant and may require even using a surrogate or another woman's uterus to carry their biological child.”

It is difficult to diagnose because it can also be mistaken for constipation, bladder pain syndrome, menopause, thyroid disorders, and endometriosis. “It can mimic other conditions. For example, it can present abnormal bleeding or heavy bleeding, which can be caused by a number of other conditions, such as uterine fibroids. It can be due to hormonal irregularity. So, it's commonly misdiagnosed or undiagnosed because it's blamed on other conditions. It can present this infertility. And again, sometimes gets misdiagnosed because of other conditions that are present and the thought to be the cause of whatever the issue may be,” Dr. Danilyants tells Brut.

Treatment options

Treatments depend on the age of the patients. For example, “In younger patients, it's much more difficult to treat adenomyosis. We know that the only effective treatment of this disease is removal of the uterus… In the younger patient who desires fertility, you know, it's very difficult to discuss this because they want to have children and obviously removing the uterus is not helpful. And it brings a lot of distress and depression as well. So, we have to try to manage the symptoms with the birth control pills or with some sort of hormonal management that may minimize or decrease some of the bleeding,” Dr. Danilyants discloses.

Brut.

02/06/2020 2:00 PM
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125 comments

  • Candice G.
    06/28/2020 16:34

    Hi I have had a total thyrodectomy done and 5 months later diagnosed with adenomyosis and umbilical endometriosis.. I just want to know if this can also be cancer. Can anyone share?

  • Ecirah A.
    06/25/2020 11:06

    Ibig sabihin ang adenomyosis nakaka baog?

  • Abdul K.
    04/10/2020 03:29

    . .

  • Ačh W.
    04/09/2020 19:03

    😞😞😞😞

  • Ivan P.
    04/09/2020 13:49

    Mal diko to alam e

  • 젤엔
    04/09/2020 03:20

    🍑

  • Hana R.
    04/09/2020 02:58

    panoorin mo.

  • Abdlbaki G.
    04/08/2020 20:27

    تم

  • ياقوت ب.
    04/08/2020 19:35

    ترجلو الزبوبة

  • وفاء ش.
    04/08/2020 12:18

    مليح طورالعلم لازم التعميم والوقاية والأرشاد بكل الوسائل

  • عامر ا.
    04/08/2020 12:07

    هناك الام نتيجة اكياس فوق الرحم وهذه الاكياس تتكون كل فترة وتتراوح بين فترة وفترة وعلاجها الوحيد هو وضع كيس ماء حار فوق البطن وبالتحديد فوق الرحم لكي تتخلصي من الالم يجب عليك ان تضعي هذا الكيس او الماء الحار قربيه على منطقة الالم لكي تنفلق هذه الاكباس ليرتاح الشخص وهذا هو علاجها فقط هذه تتكون بسبب اظطرابات الهرمونات نتيجة عوامل عديدة منها الحالة النفسية فتوادي الى بالعامية (تخربط الهرمونات)

  • Sanskar S.
    04/08/2020 09:45

    PLZ.. TAKE CARE ALL WOMEN,S

  • Yaziri U.
    04/08/2020 03:28

    Me explicas eso x mjs por fis

  • Leonardo R.
    04/08/2020 00:28

    bebe no se lo que dicen pero veo que es importante y por eso te etiqueto❤💕

  • نجاة ب.
    04/08/2020 00:20

    ما فهمت و لا شي ....الترجمة من فضلكم

  • Bouchoucha M.
    04/07/2020 22:19

    18+ هل تعلمون ما هو الزب حاشاكم . نعم ، إنه ذلك الشيئ العظيم الذي عندما كان عمرك 3 سنوات إحتفل كل افراد عائلتك تكريما له و تطهيرا له من الشحوم الزائدة إختلف العلماء حول ماهو هناك من يقول أنه عضلة هناك من يقول انه من اهم أعضاء الجسم و هناك من يقول أنه من الحواس الخمسة . الزب ظاهرة علمية تفوق قدرة الإنسان على إستيعابها وأغرب شيئ فيه حجمه تارة ينتفخ و تارة يرتخي لدرجة أن الرومان و الفراعنة قديما كانوا يظنون أنه مخلوق حي يتنفس فكانوا يخرجونه من فتحة السروال و لا يغلقون عليه ...... الزب. النم. القضيب. . او. العندليب. الدااب. العلوش ولاصحاب الحجم الصغير الزنانة البشارة هه‍هه اسماء كثيرة لشيئ واحد يشبه الأفعى السامة تعشقه النساء و هناك حتى من الذكور من يحبونه رغم أنهم يملكونه لكن هناك نوعان هناك من يحب زبه الشخصي و يداعبه كل يوم و هناك من يعشق زبوب الناس و يعشق مداعبته في مؤخرته ه‍هههه اما بخصوص النساء فهناك من يهمها حجمه و هناك من لا يهمها الحجم و إنما قوته و صلابته في بعض البلدان الغريبة كالجزائر مثلا و لشدة اهميته أحيانا تعود كل ضمائر الغائب عليه فمثلا لو قلت ديرهولي ( التمرين ) ، اعطيهولي ( المفتاح ) ، أقعد عليه ( الكرسي ) فسيضن الجميع انك تتكلم عن الزب و هناك ايضا من يستعمله لتشبيه الاشياء السيئة او الفضيعة ( مداير كي الزبي ) و يدل ايضا على البشاعة ( وجه زبي ) او الصغر ( قد زبي ) او الكبر ( قد زب الداب ) او العظمة و الجدارة ( زب حلوف ) وهناك.من يختم به الكلام(غلبت اليوم يازبي) ههههههه

  • Omnia M.
    04/07/2020 21:45

    الترجمه اي

  • Enderson R.
    04/07/2020 21:15

    pense que eran tangas

  • حكاية ق.
    04/07/2020 21:01

    ممكن الترجمة

  • Nazifa T.
    04/07/2020 19:23

    eta dekho bb